More than just a cry for mercy, this title is also an update on the latest happenings in my life and the lives of my family. And boy is it a DOOZY!

It seems the roller coaster of life just keep on rolling, keeps on spinning and sending us on death-defying loops and surges. Life has been absolutely insane lately. Oddly, I’ve never felt more confident that God is who He says He is and will do all that He promised in carrying us through the mud and manure.

Since Kindergarten, Malakai has had issues in the social environments at school. Since infancy, he’s had issues with textures. Since the age of two, he’s had a very particular way of organizing and obsessing about things. Like, organizing every vehicle in his room to line up perfectly on his bed and freaking out if they became misaligned or arranging every single kitchen utensil into a perfectly straight arch on the kitchen floor. Since starting school, he’s had issues with noise and light sensitivities and with interacting with peers and teachers. He has a lot of triggers in what sets him off into “shutdown mode” or “meltdowns” and it’s been a decade of hit and miss with figuring out where his freak-out meltdowns come from and how to calm him down. We knew there was something going on with him, but we had no idea what it was. On a referral from his school counselor (thinking he may have OCD and impulse control issues), Malakai started seeing a Community Reach counselor at the end of 2010 who quickly diagnosed him with a disorder that we had never heard of. I researched and found similarities in the symptoms to Malakai but since it didn’t line up perfectly, we wrote it off thinking the counselor pulled this out of his hat. Needless to say, we knew something was going on with him and fifth grade became a very transitional year as social interactions and classroom time were becoming increasingly difficult. Because of these issues as well as the fact that we had an extremely long list of problems with his fifth grade teacher and with the way he was treating Malakai, we pulled Malakai out of school. He had six weeks of fifth grade left but we couldn’t allow him to continue in the negative environment he was being forced into. For the first time in his life, he was saying that he wouldn’t finish assignments and was acting as if he didn’t care that he wanted to quit everything. His teacher would belittle him and single him out from the other students and showed us many, many signs of acting as if he could *save* Malakai from the issues Malakai had displayed at school. After emailing this teacher, numerous times, and meeting with him and the staff at the school, we were told there was no place for Malakai to go to finish out the year if we took him from his fifth grade class. So, we removed him from the school. Thankfully, I love researching and although I spent hours researching homeschool and education laws/rules online, I found it was actually quite an easy process (after remembering that the school and district aren’t in control of our children… WE are) to file an intent to homeschool. It also happened to work out perfectly that we pulled him the Friday before Spring Break so he already had a week off school in the works. During Spring Break, we went down the the local school supply store and stocked up on planners and workbooks and got to work figuring out a schedule that would be cohesive to Malakai’s learning style. There were some ruts in the road and some push-back but, overall, it was a pretty easy and smooth process and Malakai was relieved to be away from the poisonous environment that had begun to suffocate him.

In the spring of this year, before taking him out of school, due to the increased problems between Malakai and school and even in the classrooms he took part in at church, we started the lengthy and frustrating process of finding a psychologist that would be able to provide a Psychological Evaluation for him. We needed someone to go through the entire scope of testing and tell us what they felt was going on because we were at a loss, which put us at a loss as to how we could best help him in all areas of his life. Malakai began needing to check into the buddy-system at our church, at the beginning of this year, so he could consistently have someone with him to provide support as well as accountability. The lady that directs that part of our church taught high school special ed for over 30 years and said she was interested in what this Psych Eval would discover, because she had her own thoughts on what was going on with Malakai.

On August 5th, we received the Psych Eval results and it agreed with what the Community Reach counselor and our retired special ed teacher / friend assumed: Malakai has Asperger’s Syndrome.

Just writing that out made my head feel like it’s gonna explode. Not out of fear or any negative thought of what that means but because I truly have no idea what that means. I’ve spent the last 3 weeks, researching and scanning every medical and blog site that I’ve found. I’ve researched locals groups and organizations that care for children with Asperger’s. I spent at least 2 hours of every day, sometimes much more, reading about as much as I can about this diagnosis and it’s showed me two things. One, I absolutely believe Malakai has Asperger’s. I’m a total skeptic and I don’t jump on anything labeled a Bandwagon. If a physician is giving me a diagnosis, I’ll research that sucker until either it or I am blue in the face. Thankfully, I’ve got memories and pictures that reassure me that my child has been dealing with something for quite some time and it’s not just some random dx that a doc wants to pull from their ass. The second thing thing I’ve learned, in all of my 3 weeks of straight research is this, I still don’t know what the hell this all means. I’m overwhelmed with information and somehow unable to figure out which way is up so that I can catch my breath. I realized, this week, that it’s like I’ve got a million puzzle pieces and I have no idea how they all fit together. Maybe I’ve got the corners and edges all lined up and figured out but the middle part that houses the DNA of the puzzle is a confusing and frustrating wonder. Although, I made sure to send off an email to his former 5th grade teacher, and the staff at Malakai’s elementary school, to share with them the fact that I hope they never again generalize or try and shove any other student into their pre-formed box. **Side note** Prior to this diagnosis, I shared with Malakai’s fifth grade teacher that we felt there was something going on, deeply, with Malakai and that we were pursuing a psych eval to see about the possibility of an Asperger diagnosis. His teacher responded with, “Hm. I don’t think so… he is EXTREMELY smart. I don’t see anything wrong with him.” Sounds like the educator needs to get educated…**End side note** This diagnosis also opened up the floodgates of grace so we’ve able to see that most meltdowns happen as a result of us not planning properly for his triggers. Even still, I’ve got the world at my fingertips and I’m frozen in not knowing how to proceed or what steps to start taking in regard to groups and professional help.

Oh yeah, life.

Along with all of that hodgepodge, I’ve got my life and the lives of my husband and my girls balancing up in the air.

For me, once we got the results, I was relieved to finally have an answer. A solidified, results-based, insightful answer. An answer that didn’t have to do with, “He’s just rebellious.” “He just needs more discipline.” “He needs to stop watching Harry Potter.” “Surround your house with prayers.” Dear God… as if our trial and error circus wasn’t enough. So, I was relieved, AND overwhelmed, but mostly relieved and I jumped into research / MamaBear mode. This has been sort of world-flipping though, as I feel I’ve not had any alone time for three straight weeks. I permanently quit my part-time job (I had stepped down several weeks earlier due to personal stuff going on between my mom, which is my boss, and my dad and our family but I was hopeful in returning at some point). Due to quitting permanently, I had to pull Cali from her preschool since we couldn’t afford her school AND a second car without a second job. I also wanted to be sure I wasn’t stretching myself thin in worrying about three different schools and a job and household and this thing called Asperger’s. In the midst of all of this, I’m still trying to maintain my sanity. I’m working hard to complete a book that I’ve been reading for a year, Wounded Heart, and work on all that that entails. Which is working on some DEEP, DEEP wounded stuff. So, I’m overwhelmed with everything that being a person on a road to recovery / a mom / wife entails. I’m also wishing that I had a really good core group of dependable friends right about now.

Jase has also been going through some stuff. Our overwhelmed hearts are best explained, by Jase, here.

The girls are still flittering and floating about. It takes even more intentional effort to make sure these girls don’t fall by the wayside but I think we are are pulling it off. Cali loves being at home with me so it wasn’t very painful to remove her from school. She actually requested it since there was always a bribe (of a Starbucks pink cake pop) to go to school every day. She loved it but it was an effort to get there. Zoë is back in school and LOVING it. She thrives in a school environment so she’s at ease now that school is back in session.

Speaking of school, Malakai had the worst first week of school that I’ve ever heard about. The prep-meeting that I had, back in May, with his new school director and counselor (as well as the elementary counselor) basically did nothing. The explanation of what did and did not work as well as speaking about the behavior plan and his triggers did nothing to help them prepare for his arrival. Because… they planned nothing. I basically threw him to the wolves on his first week of sixth grade. He was instantly targeted and outcasted and the staff were much too overwhelmed in their new, busy magnet school, that they couldn’t wear enough hats to provide the safe environment that Malakai needed. Knowing all I knew from the research I did, in May, we pulled him from public school again. For the last time. Currently enrollment forms have been sent and we’re waiting on word of approval for a free public online schooling option for Malakai. Creating our own schedule, in the comfort of a loving home environment seems to be the best path. At least for right now.

So, here we are. Researching-gone-mad and stuck in the ethernets of possibilities. Thankfully, we know who we’re hanging on to during this crazy ride and we’re trusting to come out a little tattered but also a LOT stronger and wiser.